I just thought I was going to die

I remember so clearly receiving the phone call on August 24th that both of my children and my ex-husband were Covid positive. The first thought that crossed my mind is - I am going to die. I imagined being locked in a zero pressure hospital room with nurses and doctors in PPE caring for me … Continue reading I just thought I was going to die

Boundaries

Yesterday I received my normal infusion of Remicade that I receive every 8 weeks for my Ankylosing Spondylitis and rheumatoid arthritis. I am really hoping that this might help combat the remaining Covid complications. Yesterday was an incredibly hard day. I finally came to terms with a lot of people in my life about how … Continue reading Boundaries

Daily Recuperation

I want my life back. I’m tired of what this disease has done to me. I feel like I’ve been sick forever. Today I have my Remicade infusion for my arthritis. I spend about three hours at my rheumatologist office on IV. I am a bit nervous how my body will respond with everything else … Continue reading Daily Recuperation

The Anger Phase

I am so angry today. I have no right to be. I survived this. I am alive. As of today, 200,000 people have passed from Covid-19 according to Johns Hopkins. I can’t even wrap my head around how we have let this happen month after month. Covid survivors get very little in the way of … Continue reading The Anger Phase