I just thought I was going to die

I remember so clearly receiving the phone call on August 24th that both of my children and my ex-husband were Covid positive. The first thought that crossed my mind is - I am going to die. I imagined being locked in a zero pressure hospital room with nurses and doctors in PPE caring for me … Continue reading I just thought I was going to die

Covid Treatment “IRL”

I have done some public speaking (on Zoom of course) about my experience with Covid-19. A common question I get is related to treatment. I want to start by saying - there is no one treatment for Covid. There are a number of things doctors have done that have worked, but there is no one … Continue reading Covid Treatment “IRL”

Tenacity in the times of corona…

Tenacity is defined as "the quality or fact of being very determined" or "the quality or fact of continuing to exist; persistence". I would argue that tenacity is the word for 2020. Observing the responses among the people around me has been interesting this year. I tend to exhibit a more Darwinian approach to life … Continue reading Tenacity in the times of corona…

Covid Headaches 2.0

The Covid headache is a symptom I wish on no one. I have spoken with a number of survivors over the months, and for those of us with this symptom, we all agree that it is a headache like no other. An incredibly intense headache like no other is the first symptom I ever had … Continue reading Covid Headaches 2.0

Covid Self Care

Everyone has written how to care for ourselves during the pandemic. Therapy and doctor's appointments of all kinds have gone virtual. Gyms are in various stages depending on where you live pushing workouts online. When this all started my enthusiasm was high. I, like many people, felt this was very temporary. Surely our country will … Continue reading Covid Self Care

Sharing My Experience

One piece of Covid/autoimmune life that I have really enjoyed has been connecting with others. Although my journey has been a long one, it has given me the opportunity to meet people around the world who have been suffering as I have - and many, much worse. I also have learned so much about being … Continue reading Sharing My Experience

What are we doing?

November 2020 National Geographic Chicago had its first documented Covid -19 case almost 11 months ago. I have taken some time to reflect on what has actually changed. Sadly, not a whole lot. On the news I still see long lines of cars waiting to be tested for the virus. People are still fighting over … Continue reading What are we doing?

Reluctant Covid Believers

So its 10 weeks of Covid for me now. The last few days have been pretty bad and I am feeling angry and frustrated. Last night, in a fit of desperation, I broke down and doubled my Topamax dosage. Think about that, in order to hope for any sort of relief from my lingering Covid-19 … Continue reading Reluctant Covid Believers

Covid Testing and Contact Tracing

Credit: Centers for Disease Control Symptom Check: Before I get into today's post, I thought I should share an update. I am currently 68 days since I first had symptoms and 64 days since my positive test. As of today, I still do not have my taste and smell. I have fleeting moments when I … Continue reading Covid Testing and Contact Tracing