I just thought I was going to die

I remember so clearly receiving the phone call on August 24th that both of my children and my ex-husband were Covid positive. The first thought that crossed my mind is - I am going to die. I imagined being locked in a zero pressure hospital room with nurses and doctors in PPE caring for me … Continue reading I just thought I was going to die

Covid Treatment “IRL”

I have done some public speaking (on Zoom of course) about my experience with Covid-19. A common question I get is related to treatment. I want to start by saying - there is no one treatment for Covid. There are a number of things doctors have done that have worked, but there is no one … Continue reading Covid Treatment “IRL”

Reluctant Covid Believers

So its 10 weeks of Covid for me now. The last few days have been pretty bad and I am feeling angry and frustrated. Last night, in a fit of desperation, I broke down and doubled my Topamax dosage. Think about that, in order to hope for any sort of relief from my lingering Covid-19 … Continue reading Reluctant Covid Believers

Here We Go Again

Credit: New York Times online, October 20, 2020 There is no missing it, the United States is heading in the wrong direction when it comes to Covid-19 infections. I am deeply worried and conflicted when I hear this news. During last night's evening news, I heard people speaking of "Covid fatigue". Today marks the two … Continue reading Here We Go Again

Covid Activism

This sunny Friday in October started with me being interviewed by Jeanne Pinder at Clear Health Costs. She is a journalist doing research on Covid and children. I was connected to her by Body Politic, an amazing grassroots organization out of New York City. Body Politic was a group of Covid patients who realized they … Continue reading Covid Activism

Laugh or Cry

I’ve seen a lot of doctors lately. I haven’t heard a lot of good news. My daughter, who’s asthma has been under control for years, is back at square one. Her pediatric pulmonologist left us with this message, “We will do the follow up lung X-ray in the spring if nothing gets worse. You shouldn’t … Continue reading Laugh or Cry

Covid-19 Testing

Covid-19 testing in America is a mess. The first positive case of Covid-19 in Chicagoland was identified in late January. Fast forward to 7 months later, and it seems nothing had been learned and even less accomplished. I assumed getting tested would be easy, and getting the results even easier. I could not have been … Continue reading Covid-19 Testing

The New Normal

When August began, we started to feel almost normal. I might be stretching things here, but we had created a life that was manageable given restrictions and our personal needs. My daughter was playing hockey and golfing. My son was dancing at his studio. I did not plan to venture back to a gym, and … Continue reading The New Normal

Well Crap

My daughter is evidence that Covid-19 messes with kids, too. She tested positive on August 21, 2020. She was 15 at the time. She struggles with Ankylosing Spondylitis and psoriatic arthritis. Her quarterly injections make her immunocompromised. She has been terribly anxious since the pandemic started ... worrying endlessly about the virus and what it … Continue reading Well Crap