I would like to anoint 2020 not as the year of Covid, but the year no one stopped complaining...ever. Every time I thought we reached the moment that it would quit, new things were found to complain about. Sometimes it was hilarious. But most of the people complaining? Didn’t really have much to complain about … Continue reading Adios 2020, and everyone else? Quit your complaining!!!
I remember so clearly receiving the phone call on August 24th that both of my children and my ex-husband were Covid positive. The first thought that crossed my mind is - I am going to die. I imagined being locked in a zero pressure hospital room with nurses and doctors in PPE caring for me … Continue reading I just thought I was going to die
“Broken Arrow” captured by yours truly. It’s been an experience. Whenever my husband and I talk about things that aren’t so great in life, he does such a good job of framing it as part of life’s experiences. how could we appreciate the magical if everything was wonderful all the time? I think about where … Continue reading Wrapping Up 2020
One piece of Covid/autoimmune life that I have really enjoyed has been connecting with others. Although my journey has been a long one, it has given me the opportunity to meet people around the world who have been suffering as I have - and many, much worse. I also have learned so much about being … Continue reading Sharing My Experience
2020 has made it hard to connect. There were many months that the best I could do was pick a local charity to send money to each week. Sometimes I took food over to the local food bank. Being a social activist is something that matters to me and is a part of who I … Continue reading Activism in the Time of Covid
Since it has become clear that Covid-19 is not letting up, I thought I would spend a blog post on items we found particularly important while recuperating from the virus. The two most important things you MUST have on hand are a good working thermometer (make sure you have back up batteries) and a pulse … Continue reading Covid Weapons
Ever since becoming infected with Covid-19, I have wondered so many things ... How will my body react a week from now? A year from now? Ten years from now? Who are my real friends? Do they really care to understand or does the reality of the infection frighten them too much to let too … Continue reading Because of Covid …
The Chicago Marathon 2019 It is incredible to consider that a year ago right now I was running the Chicago Marathon. I was running as part of the Team Joints in Motion for the Arthritis Foundation. I had raised $1200, I had been training since June, and I was trotting my arthritic body through the … Continue reading Once Upon a Time, I Ran a Marathon ….
Yesterday I received my normal infusion of Remicade that I receive every 8 weeks for my Ankylosing Spondylitis and rheumatoid arthritis. I am really hoping that this might help combat the remaining Covid complications. Yesterday was an incredibly hard day. I finally came to terms with a lot of people in my life about how … Continue reading Boundaries
I want my life back. I’m tired of what this disease has done to me. I feel like I’ve been sick forever. Today I have my Remicade infusion for my arthritis. I spend about three hours at my rheumatologist office on IV. I am a bit nervous how my body will respond with everything else … Continue reading Daily Recuperation