I just thought I was going to die

I remember so clearly receiving the phone call on August 24th that both of my children and my ex-husband were Covid positive. The first thought that crossed my mind is - I am going to die. I imagined being locked in a zero pressure hospital room with nurses and doctors in PPE caring for me … Continue reading I just thought I was going to die

Yes, I still have symptoms…

122 days.... The other day I was having a conversation with my "mortgage guy". Amazingly, even though I bought the house in March, I already could save money on a refinance. We started talking about everything that has happened since I made the purchase, and of course we migrated to the topic of Covid. I … Continue reading Yes, I still have symptoms…

Covid Treatment “IRL”

I have done some public speaking (on Zoom of course) about my experience with Covid-19. A common question I get is related to treatment. I want to start by saying - there is no one treatment for Covid. There are a number of things doctors have done that have worked, but there is no one … Continue reading Covid Treatment “IRL”

Being a Covid Long Hauler

The idea of the "Covid long haul" patient started to emerge in the summer. Patients from New York who had been infected in the spring started speaking out about their symptoms dragging on for weeks and months. The 10-14 day window for many was stretching out well beyond what anyone could predict. The severity of … Continue reading Being a Covid Long Hauler

Covid Headaches 2.0

The Covid headache is a symptom I wish on no one. I have spoken with a number of survivors over the months, and for those of us with this symptom, we all agree that it is a headache like no other. An incredibly intense headache like no other is the first symptom I ever had … Continue reading Covid Headaches 2.0

Brain Lesions and Covid

Twelve weeks after testing positive for Covid-19, I was still suffering headaches, loss of smell and taste, and signs of brain fog and memory loss. My neurologist had scheduled a MRI of my brain with and without contrast. I knew that there were post-Covid infection patients, like myself, who had changes to their brains as … Continue reading Brain Lesions and Covid

I finally saw a neurologist!

I was so lucky to be able to get an appointment so quickly with a neurologist thanks to my ER visit last week! I had tried at my local hospital and could not get in until January 2021. I had tried at another hospital and could not get in until April 2021. This appointment was … Continue reading I finally saw a neurologist!

Medical Trial and Error

Well, this was unexpected fun. I was placed on Topamax at the end of September. For the first few weeks, the results were great. My headaches improved dramatically. Then towards the end of October, the wheels started to fall off the bus again. I was aching all over, I was congested, the smell of smoke … Continue reading Medical Trial and Error

Covid Testing and Contact Tracing

Credit: Centers for Disease Control Symptom Check: Before I get into today's post, I thought I should share an update. I am currently 68 days since I first had symptoms and 64 days since my positive test. As of today, I still do not have my taste and smell. I have fleeting moments when I … Continue reading Covid Testing and Contact Tracing