Tenacity is defined as "the quality or fact of being very determined" or "the quality or fact of continuing to exist; persistence". I would argue that tenacity is the word for 2020. Observing the responses among the people around me has been interesting this year. I tend to exhibit a more Darwinian approach to life … Continue reading Tenacity in the times of corona…
The Covid headache is a symptom I wish on no one. I have spoken with a number of survivors over the months, and for those of us with this symptom, we all agree that it is a headache like no other. An incredibly intense headache like no other is the first symptom I ever had … Continue reading Covid Headaches 2.0
A gorgeous December sun... As predicted, we are heading into (or are already in) the winter of Covid. Those of us that live in urban areas saw exactly how ugly this disease can get back in the early months of the year. The difference is that in the spring people actually cared. In the spring, … Continue reading The Dark Days of Covid
This image is interesting to me. Its my driveway, but it also represents a demarcation line between my house and the house next to me. We can cross this line. We can have no idea who lives on the other side of the line. In some cases, we might even hate the people over there. … Continue reading A Country Divided
Everyone has written how to care for ourselves during the pandemic. Therapy and doctor's appointments of all kinds have gone virtual. Gyms are in various stages depending on where you live pushing workouts online. When this all started my enthusiasm was high. I, like many people, felt this was very temporary. Surely our country will … Continue reading Covid Self Care
One piece of Covid/autoimmune life that I have really enjoyed has been connecting with others. Although my journey has been a long one, it has given me the opportunity to meet people around the world who have been suffering as I have - and many, much worse. I also have learned so much about being … Continue reading Sharing My Experience
November 2020 National Geographic Chicago had its first documented Covid -19 case almost 11 months ago. I have taken some time to reflect on what has actually changed. Sadly, not a whole lot. On the news I still see long lines of cars waiting to be tested for the virus. People are still fighting over … Continue reading What are we doing?
Twelve weeks after testing positive for Covid-19, I was still suffering headaches, loss of smell and taste, and signs of brain fog and memory loss. My neurologist had scheduled a MRI of my brain with and without contrast. I knew that there were post-Covid infection patients, like myself, who had changes to their brains as … Continue reading Brain Lesions and Covid
I honestly never thought the day would come. Thanks to the amazing work of the ER doctor I saw on the 5th, I was able to get into a neurologist and get a brain MRI speedier than I thought possible. After being told I need a therapist and told "I wish there was something I … Continue reading I finally got my brain MRI!
I was so lucky to be able to get an appointment so quickly with a neurologist thanks to my ER visit last week! I had tried at my local hospital and could not get in until January 2021. I had tried at another hospital and could not get in until April 2021. This appointment was … Continue reading I finally saw a neurologist!