Yesterday I received my normal infusion of Remicade that I receive every 8 weeks for my Ankylosing Spondylitis and rheumatoid arthritis. I am really hoping that this might help combat the remaining Covid complications.
Yesterday was an incredibly hard day. I finally came to terms with a lot of people in my life about how this is impacting me. The reality of having neurological symptoms is that my emotions are deeply impacted in a way I cannot control. Weird spikes of anger or depths of sadness happen at a moments notice. I don’t feel like myself. I am in here, but yet there is this layer of symptoms swirling around combating the normal me. It’s beyond explanation. Knowing how this feels makes the erratic behavior and Tweeting of our President understandable to me. He should not be running our country in his current state.
I am horrible at asking for help. I had a candid conversation with my work, my husband, my kids, and some other people, to let them know I can only do so much right now. I physically and emotionally am only capable of so much. I felt horribly guilty placing these boundaries, but also relieved. I am human.
On a fun note, my parents voted yesterday and sent me this picture. I think my dad fancies himself as one of the candidates. I hope everyone is reflecting long and hard on the state of our nation and planning to exercise their right to vote this election season.